Tuesday, March 26, 2024

2024 Legislative Session summary - from the Arc of WA

March 26, 2024

A Supplemental Session with Lasting Impact

The halls of Olympia are quiet now, free from the usual hustle and bustle of advocates and lobbyists. Legislators have returned home to their districts, while the Governor is busy signing or vetoing budgets and bills, meanwhile, advocates are already strategizing for the next session. Despite being a supplemental session, there was significant activity with lasting effects. Typically, these sessions focus on policy adjustments and budget tweaks, but this time, there were some notable exceptions. Here are the highlights:

Housing

This biennium witnessed a historic investment in DD Housing. A December 2022 report by DDA projected a need for 37,000 units for people with I/DD, and a recent national report, "Priced Out," highlighted the unaffordability of housing for individuals on SSI across the US. Thanks to powerful advocacy and compelling stories, legislators allocated $25 million in the supplemental budget for DD Housing. This includes $19 million for DD in the Housing Trust Fund, $5 million for Open Doors for Multicultural Families housing village, and $1 million for The Arc of King County’s Legacy project with Mercy Housing. This is in addition to last year's $25 million for a total of $50 million for the biennium.  This is a nearly 10-fold increase from previous biennia which ranged from $3-5 million.

Although HB 2276, The Affordable Housing Act,  which would have provided an ongoing revenue source for the Housing Trust Fund and included a 15% DD set aside housing did not pass, the bill helped to elevate the conversation about the importance and need for DD Housing. 


Operating Budget Highlights

Modest increases were made, including reducing the highest DDA case management ratio in the US. Additionally, smaller policy issues were addressed, including strengthening Parent to Parent and Informing Families and creating an overnight planned respite program in the Tri-Cities. Investments in Project Echo, Start Programs and the University of Washington Autism Center of Excellence will help to increase provider professional development, so they can better diagnose, serve, and support children with I/DD.

Although Supported Living received a $2.5 % rate increase, it still is not reflective of the recent cost study that shows a much higher increase is needed to adequately maintain the needed workforce. Supported living has a turnover rate of 57% and there are 450 people waiting to receive Supported Living services.

Employment and Community Inclusion programs did not receive any rate increases, although their cost study showed a need for a higher rate to be able to attract and retain qualified staff and to build capacity to serve individuals who are waiting to receive employment services or Community Inclusion services.  The budget did include legislative direction to do a caseload forecast of employment and community inclusion to help plan for the next budget cycle.

Education

Significant policy changes and investments were made in education, particularly in special education. Notably, SB5883, "The Burden of Proof" bill, which shifts the responsibility onto school districts when families file for due process.
The legislature enacted HB 2180 which Increases the Special Education funding Cap from 15% to 16%.  $71 million was provided for 2SSB5882  which increases “prototypical school staffing” to better meet student needs.  It is important to note that this staffing includes paraeducators.

The Early Support for Infants and Toddlers  HB1916 addresses a billing issue, ensuring that Early Support for Infants and Toddlers agencies will be paid for their work in the first month of a child's enrollment.
The legislature added 2 additional Special Education Ombuds to the Office of Education Ombuds.  Special Education cases are a high percentage of the work they do, and this should help provide relief.

Although the Restraint & Isolation bill E2SHB 1479 did not pass, there was funding for professional development and training and to create best-practice demonstration sites. In addition, there was $5 million to continue the inclusionary practices project with an emphasis on districts that have the highest percentage of students in segregated settings. Policies around restraint and isolation will be a priority for advocates for the next session.

Also of note is the inclusion expansion project to train staff in early childhood and daycares in best practices for children with I/DD who have challenging behaviors.

Policy

The Preservation of Records and Artifacts at Lakeland Village  SB6125 was a priority issue for advocates.  Funding was provided in the budget to implement 6125 so that these records will be made visible, and the hidden stories of those who lived there will not be forgotten. Future advocacy will focus on expansion to other RHCs and finding funding for the unmarked graves at Lakeland Village and other RHCs.

The “Nothing About Us Without Us”, E3SHB 1541 bill has passed and is on the Governor’s desk waiting to be signed. The advocates who worked so diligently are excited to attend the upcoming bill signing. Going forward, when workgroups or planning happens, people with lived experience, including those with disabilities will be at the table.

Legislative sessions always come with reasons to celebrate and disappointments.  There were several highly anticipated bills that died early in the session, including HB 2080, The Day Habilitation Bill and HB 2184, The Paying Parents of Minors bill.  Although they died, they generated a lot of discussion and legislators heard that families have real needs which need to be met. There was funding for a workgroup to study the issue of Day Habilitation. The conversation will continue during the off session about how these and other needs may be addressed. 
For more detailed information on the budget and bills, visit the Arc of Washington’s bill tracker.

What you can do now:

  • Send legislators a thank you note/email for sponsoring or contributing to bills or budgets.
  • Attend Town Halls in your local community.
  • Stay informed through the Olympia Reporter and The Arc’s News to Know.
  • Sign up for alerts from The Arc of Washington’s Action Center.
  • Connect with your Congressional Representatives.
  • Read "Hot Tips for Advocates" to improve your advocacy skills.
  • Keep an eye out for The Arc of Washington’s candidate questionnaire.
  • VOTE!
Together, let's create a community where every individual, regardless of ability, can thrive and contribute. You can make a difference!

Wednesday, March 13, 2024

2023 DDA Caseload and Cost Report

 For those of us who love data, here's the link to the Developmental Disabilities Administration 2023 Caseload and Cost Report. 

https://www.dshs.wa.gov/sites/default/files/DDA/dda/documents/23-1149%20DDA%20Caseload%20Report%20-%20Final.pdf

Thursday, January 18, 2024

Bills of Interest 2024

 

Bills of Interest - 2024 Legislative Session


HB 2184 - Allowing parent's to be paid caregivers of their minor children on DDA waivers.

HB 2080 - Creating a new DDA waiver service for Day Habilitation.

HB 2365 - Increasing access to respite care for those with intellectual or developmental disabilities and their caregivers.

HB 1479 - Concerning the elimination/reduction of restraint and isolation of children in public schools.

 

Here are just a few of the bills of interest this legislative session. Check out more at https://arcwa.org/wp-content/uploads/sites/35/2024/01/Jan-15-2024-Bills-of-Interest-1.17.24.pdf

Friday, December 29, 2023

Legislative Advocacy 2024

 

Registration open for the Arc of WA’s Advocacy Days https://arcwa.org/advocacy/2024-advocacy-days/

Advocacy Days are held virtually (via Zoom) during each legislative session to involve individuals with intellectual/developmental disabilities (IDD), their families, and their service providers in the legislative process. 


Legislative Notebook https://arcwa.org/advocacy/2024-legislative-session-notebook/

Each year before legislative session, The Arc of Washington State, the Developmental Disability Council, and the Community Advocacy Coalition collect information from disability advocates, providers, families, and community members, and compile it into a Legislative Notebook for People with Intellectual and Developmental Disabilities (IDD). The Notebook is available on the Arc of WA website


Action Alerts https://arcwa.org/action-center/

Sign up with the Arc of WA to receive Action Alert emails or text messages when legislators need to hear your voice on specific budget or policy issues. Make a difference! 

 

Washington State Legislature www.leg.wa.gov

Find your legislators, contact them via email, connect with them during session, find information on bills that have been filed, and sign up to testify or note your position on a bill.

 

Kittitas County Parent Coalition http://kc-parentcoalition.blogspot.com/

Contact Michelle Williams kittitascountyparent2parent@gmail.com to learn about statewide advocacy.

 

DDA GovDelivery

Visit https://www.dshs.wa.gov/dda/dda-messages and sign up to receive timely messages and updates from DSHS and the Developmental Disabilities Administration.

2024 Legislative Notebook

 

The 2024 Legislative Session Notebook is now live on The Arc of Washington website!

Note that this is a work in progress, and materials will be added or updated throughout the session.

 

Here’s the link!     https://arcwa.org/advocacy/2024-legislative-session-notebook/


Wednesday, December 6, 2023

2024 Advocacy Days

 Legislative Advocacy Days are all virtual this year!

Check out the topics and register to hear all the info about what's going on legislatively in Olympia this year.

Registration is now open: click on the topic to register

Advocacy Day begins at 10:00 am

Spanish translators will be provided

 

January 10 – What Are Our Rights and How Do We Advocate?

January 17 – What Do People Need to Live in their Community?

January 24 – How Do We Create Safe, Affordable Places to Live?

January 31 – How Do We Support Families to Support their Loved Ones?

February 7 – What is Needed to Ensure Every Student has an Inclusive Education?

February 14 – Engaging in Our Communities – How Do We Make Our Communities Welcoming?

February 21 – Why are so Many People in Crisis?

February 28 – What Can You Do Now? 


Monday, October 9, 2023

2024 Legislative Priorities

 

Washington Statewide Parent Coalitions

 

2024 Legislative Priorities

 

Capture and fund Supervision/Safety Support needs in all settings

·         Individuals with Intellectual and Developmental Disabilities  (IDD) have a right to be safe in their homes and communities, and the Developmental Disabilities Administration (DDA) has a responsibility to provide that support wherever an individual lives, including the family home.

·         The CARE assessment should be adjusted to capture and reflect safety support needs for every individual.

·         Overtime exemptions should be allowed for individual providers (IPs) who provide supervision in addition to personal care.

End the Provider Shortage

·         Individuals with Intellectual and Developmental Disabilities deserve a well-trained provider workforce, who are paid professionals making a livable wage, able to meet individual support needs and prevent harm and neglect.

·         Implement DDA’s study in HB 1694 to Pay parent care-providers of individuals under the age of 18 who have medically and behaviorally complex needs.

·         DDA services and Providers must be developed in all areas of the state.

Develop Adult Day Services across the State

·         Develop statewide DDA Adult Day Programs in community settings that end isolation and support personal choice, individual goals, social engagement, habilitative goals, and personal care needs.

·         Make Adult Day Programs/Adult Day Health a separate waiver service (aside from respite and Day Services) with its own dedicated funding.

·         Fund the upfront development costs, staffing, and implementation of statewide DDA Adult Day Programs in community settings across the state.

·         Support rate parity across DDA Day Services (Community Inclusion, Community Engagement, Supported Employment, Adult Day Programs, and Respite). to build a robust provider network and more equitably distribute DDA funding.

End Isolation and Restraint in Schools

·         Continue legislative work toward reducing and ending the use of restraint and isolation in schools.

Increase Access to Housing and Residential Supports for Adults with IDD

·         Individuals with IDD have a right to affordable, accessible, and sustainable housing in an individual’s chosen setting with their needed level of services and support and regular access to the community. Services and funding should follow the person, wherever they choose to live, including their own family home.

·         Reduce eligibility barriers to DDA Core Waiver services and prioritize Core waivers for individuals whose family caregivers are aging.

·         Develop wrap-around life-transition planning services for adults with IDD who have aging caregivers or who want to change where they live. Planning should include housing, residential supports, access to the community, financial planning, and long-term sustainable care. Expand access to the Family Mentor Project for individuals with aging caregivers.