Wednesday, November 20, 2019

2020 Parent and Family Priorities

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What Parent Coalitions hear from families: 

Equity: Services are not equitable across settings for the individual. 

Community Capacity: Communities lack the capacity to meet the needs of 
individuals with intellectual and developmental disabilities. 

Customer Experience: Families are experiencing significant barriers within 
the Developmental Disabilities Administration (DDA) system, including 
inaccessibility, lack of transparency, lack of cultural competence, and 
challenges navigating the system.

Families need investments in services in the community:

Increase the number of Individual and Family Services waiver slots.
the number of individuals being found eligible for DDA is increasing by more
than 500 people per month. We need to address the backlog of families and
provide this preventive service to keep families from going into crisis.

Increase the availability of out of home overnight planned respite in 
local communities. This allows families to have a break and prevents higher 
cost crisis services. Families want this service in their local community.

Provide seed grants to local communities to identify needs and help develop
and increase local providers with priority going to rural communities. Local
communities, particularly small rural areas are struggling with not having
enough providers. Allowoing investment in a "ground up" approach will 
help to create opportunities that can be customized for the needs of the 
local community.

  #Equity #Family #Community